Download Ebook Bad Blood: The Tuskegee Syphilis Experiment, by James H. Jones
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Bad Blood: The Tuskegee Syphilis Experiment, by James H. Jones
Download Ebook Bad Blood: The Tuskegee Syphilis Experiment, by James H. Jones
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Product details
Hardcover: 297 pages
Publisher: Free Pr; Exp&ed edition (January 1, 1993)
Language: English
ISBN-10: 0029166756
ISBN-13: 978-0029166758
Product Dimensions:
6.2 x 1 x 9.5 inches
Shipping Weight: 5.6 ounces
Average Customer Review:
4.3 out of 5 stars
51 customer reviews
Amazon Best Sellers Rank:
#227,065 in Books (See Top 100 in Books)
An excellent discussion of the infamous Tuskegee experiment, which is notorious for its lack for regard for human rights. This book will help you to understand why the black community is mistrustful of outsiders coming to 'help' them, although you may be left wondering how on earth the doctors of the PHS could justify their actions to themselves, and keep on denying men the treatment they needed.
To think that medical personnel could conduct such an experiment, and that the collusion with it extended far and wide almost requires a willing suspension of disbelief. Illiterate, indigent individuals were persuaded to participate in a study of the progress of syphilis for nothing more than a modest burial payment. Black and white doctors and nurses, medical professionals at the federal, state, and local levels, were involved in this experiment, to the utter disgrace of every one who took part. Leading men of the day thought it was perfectly okay to continue the experiment and to leave the subjects untreated even after the discovery that penicillin would likely have cured them of the disease. The fact that the experiment did not end until some forty years ago suggests that racism was at its heart and core. These men were simply expendable, and this fine book illuminates it all.
This book is probably one of the first of the expose type to zero in on medical culpability in the US. Most people tend to think that only Germany was capable of doing the atrocities that occurred during WWII. It was these atrocities that led to the Nuremburg Code of conduct for physicians and scientists, yet it was known prior to the Germans butchery that other countries including the US and England were equally responsible for using human beings for questionable experiments. As a student in medical school I came across references to this book and others like it. My interest lay in the fact that as a Deaf person, I know what it is like to have doctors treat me with disrespect and patronizingly. I started researching into how lack of education leads to people being taken advantage of by the medical establishment. In my research, so many referred back to this particular book, I decided I just had to read it. Not only have I read it but I have lent it to others who share my concern that there are medical practitioners out there like Kervorkian who would have no problem putting to death or using for unethical experiments, people who they view as less than people. Jones did a magnificent job of research and follow-up with those involved in this horrible fiasco. Not only were these doctors racist, but they considered anyone with lower education to be only as useful as animals...to an extent they treated these men with less care and concern then they treat animals used in experiments today. Jones was more than fair, including reasons for why these doctors and nurses, both black and white, did not perceive this long on-going experiment as being wrong. It is partially due to his exposure of this experiment, that other minority groups including the disabled are looking carefully at the medical establishment for bias and prejudice, for neglect and outright denial of fair medical treatment and availability of treatment. Every medical student, public health student, science student, educator, and frankly everyone should read this book. I am deeply concerned that if we don't pay attention to the ethics of all the new science and medical information being found, we will once again allow someone somewhere in our nation the opportunity to use a particular group of people for their own unethical purposes. We cannot afford to turn a 'blind' eye to this happening again. Karen L. Sadler, Science Education, University of Pittsburgh, klsst23@pitt.edu
The "study" of the natural history of syphilis in black men is important to understand. Because it involved US federal funds and US federal researchers, it was a key demonstration that serious ethical problems in research were a mainstream event rather than a fringe problem; awareness of this project fueled concern for regulatory oversight and led to the development of federal regulations. James Jones' revelations were key to this process, and everyone involved in human subjects' research should read this book. Overall, the book is well researched and well presented. One of the more frightening aspects of Tuskegee is subtle, and doesn't get as thorough a treatment as it could have; that is, some of the outrageous features of the project were not the result of single outrageous decisions, but were rather the sum of many smaller errors. These are harder for a researcher to dismiss as things s/he could never have done. As a physician, I can comfortably say that I would never deliberately deny effective therapy to someone with a serious illness. But I can not as glibly say that I would have been the one to stand up and rebel when a protocol committee in the late 1940s or early 1950s decided that the evidence for penicillin's effectiveness in advanced syphilis was not QUITE good enough to mandate terminating the project. There are also some rough spots in some of the technical information, most glaringly a rather startlingly inaccurate description of what's involved in a spinal tap. Those are small issues, though. Overall, this is an excellent book that makes it abundantly clear why Tuskegee is so important to our thinking about research ethics, and helps the reader understand why certain racial and ethnic groups have a distrust of medical research.
What can I say other than "Why O Why"!!! This book is well written and brings out into the forefront of our American history one of the most shameful atrocities against humanity. The movie was hard enough to accept, but when I read the details as to why the experiment was done and the lack of respect and regard for a human race, it caused me to shiver from core to circumfrence. It boggles my mind to know that there are, and have been, people on this earth who can voluntarily afflict a human with a disease all in the name of science and see nothing wrong with it. Nevertheless, overall the book took me on a historical and statistical journey that filled in several unanswered questions from the movie and its delivery was crisp, spellbinding and gut-wrenching...all at the same time.I have already recommended this book to several of my colleagues who believe in knowing our history...in the name of future avoidance.
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